Hi, everyone. So this isn’t the way I wanted this video to go, but continuing vlogmas without explaining what the heck happened would’ve been ridiculous lol In this video, I tell you about the health issues I have, including my invisible illness. All of this comes back to the lack of a vlogmas video yesterday and may explain some things you noticed in other videos.
25 Comments
Vlogmas is fun but I think we all understand that sometimes you need to set things aside for your health. Please take it easy and feel better!
Honey you don't have to be Sorry! You've share something very personal here, & we're privileged that you have! Your clearly a Positive, & selfless person, Thankyou 😚
It sucks having an invisible illness. My psoriatic arthritis doesn't sound anywhere near as bad as your heart condition though. Look after yourself.
Awe Sonnie, as much as we all love your vlogmas videos, please don't feel pressured into having to do one every day, you don't need that kind of stress level. We'd rather have you healthy and happy and totally understand if you need have some time off on occasion – we (your YouTube adopted family) will still be here waiting & supporting 🙂 x big hugs
Hi Sonnie. Thanks for sharing this difficult time with us. You don't have to apologise for you "failure" to make only "happy" videos. If you put emotions in your work it makes it more personal, more true and less shallow. Having a video channel about your life is a hard thing to do. You are exposed to other people's opinion about you, without knowing YOU. That can have some depressing effect because of the modern culture of quick browse, "like" and move on. On the other hand it's really uplifting to have such support from strangers from all over the world.
So keep your strong will, listen to your body, treat it the best you can. It's not my place to give you advice, but if you can live a happy life (although with some restrictions) without drugs, just do it. All the side effects of all that poison will be worst than any illness. Learn what foods will be better to your condition and try to eat as healthier as you can. As the saying goes, we are what we eat!
I hope you'll get well soon!
Sorry to hear about your problems. Very brave of you to talk about it publicly, so good for you. As everyone else is commenting, vlogs are nothing compared to your health, so don't feel under any pressure to upload videos within a certain time. Just look after yourself. It's the down's in life that make us appreciate the up's all the more. Take care and best wishes from Glasgow.
get yourself well first sonnie,never mind vlogness your health is more important.get as much rest as possible.
That cost for an ambulance sounds insane. That must surely kill people!
if your doctor said to wean yourself off your medication cold turkey probably isn't the way.after clearing it with your dr slowly reduce the dosage over a few weeks,never be embarrassed by a dumb disease I have crohns and at one time was on 40 plus tablets a day and just now on zero but it could come back.hope you feel better soon.be carefull.
p.s the uk,s nhs has issues but it doesn't take money of sick people that's just wrong.
<3 thank you so much for bringing light to invisible illness. I have stable SVT, HPB and Asthma. Remember that you're your #1 priority.
You don't have to apologize for making a video discussing a serious matter. Nothing wrong with being down to earth about your struggles and It's your channel!
I'm sorry to hear about your struggles. I too have a health condition that greatly impacts my life and there's nothing much worse than feeling like a prisoner in your own body!! And yes it's funny how s1 can look perfectly healthy and nobody realise they're ill.. My condition has led me to be fascinated with the human body to a degree that I'm practically driven mad lol I wonder what your diet is like.. I could probably go on about this subject forever lol
Girl: How are you doing?
Me: I feel like death..
Girl: You're still handsom!!
Me: I'd rather feel better…
I wish you well Sonnie!! Hope you figure it out
Jeez Sonnie, no need to apologise, you need to take care of yourself first, the vlogging can wait until you're better. Mental care as well as physical is just as important and time is a healer if you need it. Of course we would have you back in Scotland in an instant so we could look after you, okay maybe lots of hugs 😀 so take it easy, take your time, share more if you want to… we are here and we are listening. Brave girl.
So sad you're not well 😖 But look , you always seem to be so happy and live a great life , you are an inspiration for others under similar circumstances 😃😃😃
Sonnie, Please don't be concerned about us or vlogmas. You must take care of yourself first. Please don't think this painful situation you are having, will negatively impact how we feel about you and your channel! We appreciate you sharing this private part of your life. After you dicuss with your doctors, maybe you can start shaving off little bits off of the pills every other day a tiny bit at a time…. and so on
Aww, I want to send you hugs but I'm a straight male and we often don't do emotional issues as well as gay blokes or females, and even if I said I wished I had a Harry Potter wand to magic all of your health issues away, it sounds even more cheesy than the other comments from elsewhere, but I would still do it anyway if I could.
Maybe Joe can give you a big hug on my behalf instead but I'm in two minds as to whether to ask him to have a sly smell of your hair shampoo too, just to satisfy one of my fetishes, but then again maybe not lol
I suppose I could ask him to walk about in your apartment in just his skimpies and a bow tie if that helps raise your blood pressure and gets your heart racing maybe?
I came to this video after seeing the title and having just watched Vlogmas Day 2, where you were all drunk (don't deny it lol) and being loud and happy, so this was a bit of a comedown on the back of that Sonnie, yet from all of your other videos, I would never have suspected anything, as you certainly never give out the impression that you are feeling sorry for yourself anyway.
I'm sure it will only be a matter of time before we see you as your usual self in future videos and tell Joe to keep up the good work as your own personal Guardian Angel and to Hugo that I said he is a boss……Do you see what I just did there? 😉
Im surprised they didnt try to reduse the dosage over time. Anywah, hope you are feeling/doing better.
Good thing you live in Scotland, otherwise you’d be paying so much in America for “health care”
Thank you for sharing. I have an immune disease so I understand about invisible diseases. I totally get brain fog and medication side effects. BTW, medical care in Japan is awesome!
My heart goes out to you, I don’t normally watch young ladies on YouTube as I’m a 57 year old man. I used to work in forensic learning disability environment until I was 49, a job I was passionate about beyond belief. It fitted neatly with my law degree and my philosophy around offending and disabilities in general. In 2009 I acquired very strange nerve damage around my lungs, I already had severe persistent atopic asthma and at that point I’d suffered pneumonias and collapsed lungs at different parts of my life. At that point I was in my 14th year of sobriety, but my consultants have always been adamant that my condition has more to do with being born with bronchitis than self inflicted damage. This I’ve never been too sure about, but I like to say that I did the damage as a Blackburn Rovers supporter when we were playing our arch rivals Burnley and getting carried away shouting. Again my consultants doubt this (one of whom is a Rovers supporter too) and they think in all probability it was a shingles type infection along with my already weakened lungs.
Now I use the top 18% of my lungs and that number is getting smaller all the time. My brain is closing my lungs down because breathing is too painful, which is different from the norm with respiratory condition where the lung only has 18% strength throughout the entire organ. So in effect my brain is slowly killing me and not even all consultants have come across my condition before. My asthma now is counted as extreme and I’m on 21 different medications including some massive painkillers, steroids and a nebuliser 4 times daily. I too am on medication that I haven’t to stop even though you build a dependence on them. I’m on one medication taken for the side effects of a medication taken for the side effects of my high steroid intake.
I also understand fatigue and can only rarely manage to stay awake after 5.00pm and I spend at least two full days a week in bed. My doctors say it’s a mixture of low oxygen, usually around 92% sats but can go much lower during an asthma attack, and also my massive levels of medication. My pain physio says it’s also my body shutting down because it can’t cope with the pain.
The reason I’ve said all that isn’t for any effect, but to say I understand a little of what you are going through, I’ve also have pancreatitis but that was definitely self inflicted but mine is quite dormant at the moment. However, I’m 57 and when I was drinking, which is now 23 years ago this month, my GP told me in no uncertain terms I wasn’t going to make 40, so I’m grateful for every day I have. I am not, like you are, a young person on the cusp of an amazing life, its more than evident special things are going to happen for you.
I saw my first ever video of yours directly prior to watching this one and I don’t normally click on young people's videos, in fact, except for photography, I think yours is only the second I’ve ever clicked on. I commented on that video about your obvious humility, but in this video I’m also struck by your amazing strength and fortitude. You remind me of the most amazing lady I have ever met, who was profoundly affected by a stroke at the age of 28, 14 years ago, which is a few years older than you. She is hemiparuplegic down her right side, such is her drive and fortitude she can thread a needle one handed. I’ve been lucky that for 2 1/2 years I’ve been able to call her my wife. I see her strength in you, the same drive to move forward.
There is something about you that comes across in your videos that despite your challenges you will not let them define you. I know that those who love you will be incredibly proud of you. I have a friend who is affected by Secondary Progressive MS, as I tell her, having a condition doesn’t make you special or brave, it’s what you do with that condition that does. And, like her, I can see you inspiring many people, and because of this channel you might not meet many of them, but the inspiration is there.
On a final note, I lost my job in the forensic service because of my condition, and I admit I cried like a baby as I loved it so much. But then through doing voluntary work at a Disabled Peoples Organisation I not only met my wife but I've also got another job, albeit very part-time, I love as much as the forensic service offering welfare advice to others with disabilities. I know you too will find a role that will fulfil your passions and beliefs.
I wish you well on your journey of life, I promise there will be more joy than sorrow even if at times it doesn’t feel it. I also know this is just the beginning of something very special. Take care of yourself, you are definitely worth it.
I'm coming to this late as a long-time subscriber but hadn't been getting notifications so didn't realise you were doing vlogmas (don't worry, I've hit that bell now!) and am only just catching up now.
I've never travelled and I love to watch channels like yours and imagine what my life might have been like if I hadn't settled in my little corner of Wales so early. I love the opportunity YouTube gives me to learn about other places and cultures, my son and I sat this evening and watched you talk about facemasks and why people wear them, he was fascinated.
As you say, your channel is so light and upbeat and gives me a little bit of happiness while I go about my day-to-day business, so much so that I start to feel like you're a friend. I'm sure it's strange to think of someone you don't know, half a world away, being deeply affected by your words; but this video brought me to tears. I hesitate to say I'm sorry for you because I'm sure you don't want my pity, but I just wanted to reach out and say that I hope you're doing well and continue to fight this battle. I really love the vlogs and hope they continue once vlogmas is over, I just love seeing what life is like over there! Beth xx
Just stumbled upon this, rather belatedly. Thanks for opening up, I thought Japan had a similar system to the UK, for healthcare, with the majority of the costs covered. It can feel debilitating, and humiliating when you can't do something you feel you should be capable of… but, you shouldn't hide it from those around you. Give them a chance to step up. But, to be contrary, it is still your choice. Hopefully, the worst is now in the past.
I sympathise about the trouble with long term medication, I've had similar problems with steroids, balancing their benefits and harms…
My friend left with graduate just recently, scottish healthcare is slightly a joke but invisible illnesses are always over looked and disregarded, took her 6 years due to her EDS
Hi Sonnie, So sorry to hear you are having these health issues. I hope by sharing it with us your viewers, makes it in some way easier to cope with. In the short time I have been watching your blogs I've really come to like you, and care about you, as I'm sure all your others viewers have.
I do hope you feel better soon.
You are so strong! <3 <3 <3
Youve been through so much. And you've come out of it with still good more good experiences. And you're still smiling about it! I don't think that i could do that. Such a strong person.